Showing posts with label anxiety. Show all posts
Showing posts with label anxiety. Show all posts

The Truth About Being Fearless With Cancer

Several months ago, one of my old high school teachers emailed me to ask if I�d consider sharing my story with her moms' church group. (And by old I mean �former.� That woman hasn�t aged a minute. She�s lovely.)Her group had been focusing on the topic of �fearlessness in the face of adversity,� and she thought I might have, I don�t know, some insight on the subject.

Which bwahahahaha omgggg nooooo. I am the opposite of fearless. I�m scared of at least 23 bajillion things. Also, I don�t do public-speaking. Not voluntarily. When I feel compelled to share something, I perch myself behind the comfortable security of a computer screen.

I could hear the fraud police sounding their sirens.

In a momentary lapse of judgement I wrote back, "Why yes, of course. I�d be happy to speak to your group." It took maybe four seconds after clicking �send� on my reply before the gravity of what I'd just done set in and I was like Dear. God. What. Have. I. DONE?!



But I was stuck - no backing out. (In hindsight, I could�ve very easily backed out. Cancer card, remember? It came under consideration.)

So fearlessness, huh. What in the world could I say about fearlessness? 

When I sat down and tried to formulate some intelligent thoughts on the topic, I came up short. Like way short. In fact, this whole ordeal had a way of highlighting how terrifically un-brave I actually am.

One rule I have for myself when I write is to be honest. Unapologetically so. If I can�t tell the truth about something, I shouldn�t bother writing about it. So that�s what I did. I told the truth.

I stood in front of a bunch of moms who were hoping to hear encouraging words on how to be powerful and strong and brave and I told them sorry I�m none of those things no joke I�m afraid of seesaws even. (It then occurred to me that I probably shouldn't pursue a career in motivational speaking.)

But c�mon. It's not like cancer came along and tapped me over the head with its magical wand of fearlessness. I didn�t get diagnosed and then poof - holy crap I�m not afraid of death or spiders hiding in my shower anymore this is the best I am INVINCIBLE.

That, uh, didn�t happen. (If you know someone this did happen to, let�s talk. I�d really like to stop being afraid of spiders hiding in my shower. It is so inconvenient.)

What did happen was this - over the last several years, I�ve been presented repeatedly with situations and people and opportunities that have made the following abundantly clear:

I am so NOT ALONE in my suffering. Afraid, yes. Alone, no.
Sidebar: I haven�t alluded directly to my Catholic faith much on this blog. So let�s just get that out in the open. I�m a Catholic, hi. A practicing one, for what it's worth. I believe in God and I pray to Mary and the Saints and I was raised by parents who met their children�s tears with the pragmatic response of: �offer it up.� Moving on.
I can be massively dense sometimes, and I'm pretty sure God knows this about me, so He sends frequent reminders to say Listen up punk, I'm not gonna pull a fast one on ya. I�m not going anywhere.

He's all, "Liz, you insane little person you. I know you�re freaking out, but for Pete's sake, would you calm down for 5 bloody seconds?! I've got you. I'm with you. I can�t take away your suffering, but I can hold your hand through it." Which sounds like a pretty darn good premise for a country song. DON'T YOU DARE STEAL MY IDEA. (Also, I was on the fence about this entire paragraph because it sounds borderline blasphemous to invent ludicrous dialogue coming from God, but I'm also really lazy about editing so get over it already.)


When Cancer Struck (The 2nd Time), I Was Consumed By Fear


Three years ago, Paul�s cancer returned after two years of him being cancer-free. That was a dark time. I can�t speak for Paul, but for me, it was the darkest time of my entire life. Darker than being diagnosed myself.

Moments before our universe imploded in on itself, I was cradling my four-week-old daughter, enjoying the fact that she preferred to spend the bulk of her time sleeping, which lent me the freedom to pursue lofty endeavors. (Breaking Bad. I spent my entire maternity leave watching all five seasons of Breaking Bad. I live my life with no regrets.)

Just as I was about to see how Walt�s attempt to poison deranged drug lord Tuco Salamanca would play out (no regrets!) my phone rang.

It was Paul, and I could tell by his voice that he had been crying. Not the reaction you want to hear from your husband after what was supposed to be a routine checkup with his oncologist.

�Something came up on the scan,� he told me. And I was all �Um no it didn�t because we just had a baby and I�m not even remotely equipped for this and it will ruin everything and how am I supposed to enjoy Tuco being brought to justice if you�re sick again?!� And he was all �I married a lunatic.� And I was all �YOU KNEW WHAT YOU WERE GETTING INTO. DON�T CHANGE THE SUBJECT.�

None of this is fabricated.

Paul and Ingrid, 1-week before chemo. Taking it all in stride, as usual.

In a matter of weeks Paul would start chemo. But chemo wouldn't work.


Next, his surgeon would attempt a debulking operation. Strike two.

At that point, the alternative chemotherapies presented to us had somewhere around a 5-10% chance of working. Stats we weren�t keen to gamble Paul�s life with.


Fear consumed me. After Paul�s failed surgery, it hijacked the last shreds of hope I had held onto so tenuously during all those months of chemo. I remember thinking this was it. No way he survives this disease. 

I was devastated. And afraid. 

I was terrified of all the unknowns lurking in the shadows of the dim road before us. With Paul sick and out of work, how would I support my family when, at best, I had the emotional resilience of, say, a fragile teacup? A scared and timid teacup who gets overwhelmed to the point of paralysis when the grocery store is busy?


Cancer Didn't Make Me Fearless, But It DID Remind Me I'll Never Be Abandoned


Here�s how:

God wouldn�t cure Paul. He also wasn�t going to make me especially brave or even normal enough to go grocery shopping without an emergency Ativan in my purse.

Instead, He would answer our prayers by placing all of these wonderful people in our life who would literally keep us going.

People who would organize a massive fundraiser the month after Paul�s surgery so that we didn�t need to be afraid of not having enough money.

People who would babysit Ingrid so that I didn�t have to miss work while Paul was in the hospital.

People who would point us to experts in the mesothelioma field so that we could approach this disease with less fear and slightly more courage.

God had not abandoned us. Our community was proof of that.


"Do Not Worry About Your Life"


Two years later, the shock of my own cancer diagnosis would, unfortunately, send me back into a downward spiral of panic and despair. One sick spouse is more than most families can handle. How were we going to do this?

When fear attempts to hook its icy claws into me (a common occurrence lately) I like to recall the following passage from Matthew, which happened to be the Gospel reading just days before I started chemo:
�Therefore I tell you, do not worry about your life, what you will eat or drink, or about your body, what you will wear...look at the birds in the sky; they do not sow or reap, they gather nothing into barns, yet your Heavenly Father feeds them. Are not you more important than they? Can any of you by worrying add a single moment to your lifespan?...so do not worry and say �What are we to eat?� or �What are to drink?� or �what are we to wear?�...Your heavenly Father knows that you need them all. But seek first the kingdom of God and his righteousness, and all these things will be given you besides.� 
-Matt 6:25-34
I mean even if you�re not particularly Churchy, those are some beautiful words. Beautiful enough to plunk them here for the SECOND time on this blog. (But who's paying attention?)

When The Storm Hits, Cling To The Cross


Growing up, my mom had this huge painting displayed in our dining room. It featured a woman marooned on a perilous bit of earth during a flood, and I always thought it was COMPLETELY HORRIFYING. Please note the outstretched limb of a drowning person in the foreground.


Now before you get all �Catholics are CooCoo for Cocoa Puffs� on me, let me point out what an effective visual reminder this image is. It's hugely compelling. It certainly commands your attention. Particularly if you�re an easily frightened 8-year-old who cries when your mom is 5 minutes late picking you up from dance class (fragile teacup, remember?)

Early on in my treatment, my mom gifted me a smaller copy of this picture saying, �I don�t know if you like this painting, and you totally don�t have to hang it up in your house if you think it�s awful. You won�t hurt my feelings.� 

And, really, it was so perfect. (Thanks, mom.)

Because in our weakest, most desperate moments where we can�t see the light through the storm, what can we do except cling to Christ?

Welp, Okaaaaay. I can think of a few other unsavory things we might turn to in our bleakest moments. I'd be breaking my own  "write-with-honesty" rule if I failed to admit I've nursed my fair share of cheap wine bottles in (way too many) attempts to soften the edges of my suffering. 

In the end, though, that approach led to more searing headaches than anything like clarity or acceptance. 

I can�t make sense of our suffering, or the suffering of our broken world. It defies explanation. I can�t make my husband un-sick, I can�t tell my daughter she�ll always have her daddy around or that my cancer won�t ever return. At times, things become so bleak that I can�t see through the storm. This is when I need to cling to Christ until the darkness passes and the waters become still again.


Christ tells his disciples, �I will not leave you as orphans. I will come to you.� (John 14:18) One pretty rad promise, if you ask me. He loves you so much, and he is NOT going to abandon you.

You will still suffer (that's the thing about Catholics, they're all about this thing called "redemptive suffering".) And, sorry, you�ll still experience fear. That doesn't really go away.

But in all of your hurt and through all of your anxieties - you�ll never, ever, ever be alone. 

Because life isn't meant to be a one-man show.

xoxo, Liz


unsure of what I'm clasping in my ring finger, but HEY I'm a mom and moms always have garbage in their hands when they take family selfies



It's My "Cancerversary" - I Welcome Cake, Smiles, And Good Cheer


�Without the dark there isn�t light. Without the pain there is no relief. And I remind myself that I�m lucky to be able to feel such great sorrow, and also such great happiness. I can grab on to each moment of joy and live in those moments because I have seen the bright contrast from dark to light and back again. I am privileged to be able to recognize that the sound of laughter is a blessing and a song, and to realize that the bright hours spent with my family and friends are extraordinary treasures to be saved, because those same moments are a medicine, a balm. Those moments are a promise that life is worth fighting for, and that promise is what pulls me through when depression distorts reality and tries to convince me otherwise.�  

- Jenny Lawson: author, blogger, mental illness sufferer, lovable oddball

***

A year ago today I got probably the least fun phone call ever from my Ob/Gyn.

I knew what was coming, and I thought I was prepared to hear it. But like who�s ok with hearing they have cancer? Nobody. I�m guessing.

I don�t normally get caught up in dates or anniversaries (�cancerversary� as some would call it). But when I think about how much my life has changed in the last 365 days, I�m still stunned. I still can�t believe I have (had? Can I use the past tense yet?) CANCER. It doesn�t compute. It�s too bizzaro. Until I look down at my chest and then I�m like �Oh, right. THAT happened.�

Getting diagnosed with cancer was lousy.

The two weeks following my diagnosis were lousy X a billion.

Cancer is one thing. But it�s all the unanswered questions that come after a diagnosis that will turn you into a sleepless zombie at 3 AM. Questions like: �What stage am I?� and �Did it spread?� and �Am I going to go bankrupt?� and �What if my skull has a weird shape?�

I remember asking my brand-new surgical oncologist if he could give me something to calm my nerves. �My brain won�t turn off. I sleep for 1 hour at night. GIVE ME DRUGS I NEED THEM OR MY BRAIN AND HEART WILL EXPLODE FROM ALL OF THESE WORST-CASE SCENARIOS PLAYING OUT IN HEAD PLEASE THANKS.�

The last year looked something like this: 
  • 16 rounds of chemo 
  • 1 ER visit, following a freak reaction to my meds (in hindsight, kind of a funny story. I�ll tell it to you, sometime.) 
  • 2 mastectomy operations (because one is never enough) 
  • 2 implants in. 1 implant out. 
  • Physical therapy to prevent lymphedema (I�d rather skip the compression sleeve if I can help it.) 
  • 36 rounds of radiation 
  • Daily tamoxifen pills 
  • Monthly Zoladex injections. IN MY BELLY.
  • Scars, burns, weight loss, hair loss, fatigue, nausea, anxiety, consolatory hot fudge sundaes. A lot of those.
And that was just me. Add Paul�s stuff to the list and you�ve got a full-blown dissertation on your hands.

People tell me things like I�m a tough little cookie all the time. A lot of cancer patients have issues with compliments like this, and I totally get it. Because anyone in their situation would do the same thing, and are we really that brave for just doing what it takes to stay alive?

Buuuut: you know what? 2017 was a total stinker. And maybe I don�t give myself enough credit for kind of keeping it together and sort of carrying on in less-than-favorable circumstances. Maybe I AM strong, and whatever - I like when people tell me I am. SO SUE ME.

And anyway, if we�re handing out Tough Cookie Awards, Paul is so clearly the top contender.

I know in my last post I said he wasn�t optimistic about future treatments. But after discussing things with his oncologist, he�s considering giving chemo another shot. This time, at a lower and less frequent dose.

In the meantime, we�re enjoying the heck out of life and each other.

Like last week we took Ingrid to Disney on Ice. We voluntarily spent 2 hours dodging rogue glow sticks and listening to toddlers howl. Because that�s what families do. 

It was the best.

Love and Happiness,Liz

15 Tweets That Will Make You Laugh If Your Life Is A Trainwreck

Are you on twitter? I've only been hanging out there since the summer. For months, I felt like a stranger in a strange land. I still feel like the gangly tween at the party, but I don't care because twitter is where all the hilarious, raucous kids hang out and it makes me feel like maybe I could sit at their lunch table and, I don't know, trade friendship bracelets or something.

Basically, I swing by twitter when I need a laugh. Take these with a huge grain of salt.



15 Tweets That Will Make You Laugh If Your Life Is A Trainwreck:

1.

2.

3.

4.

5.

6.

7.

8.

9.

10.

11.

12.

13.

14. 

15.

I'd also like to take a moment to point out how hilarious and fantastic my friend Maureen is (note # 5). I know her in real life, and it's the greatest.


What's So Great About Being Busy All The Time?

Turns out radiation leaves me wrecked. I am running on low batteries, my friends. Anything not required for basic survival is being given a bloodshot glance of dismissal from me. Including writing. And probably mailing out Christmas cards. Which, normally, are two activities that give me quite a lot of pleasure. Now, they just look like work. I am trying to give myself the grace to NOT do things. And to not feel badly about not doing things. 

Can We Stop Glorifying Busy, Already?!



Photo by Andreas Klassen on Unsplash


Ever feel like being busy has become the modern equivalent of �living life to the fullest?� We�re obsessed with being busy. It�s in vogue.

It�s also a drag.


Look at the way we talk - autopilot kicks in when people ask about our weekend -- �It was good, just busy.� We don�t even notice ourselves saying it because it�s become such an ingrained dimension of how we interpret our worth. If we say we�re busy, we must be productive. If we�re productive, we must be a worthwhile human being.  


I say it. All the time. Even when I KNOW I haven�t done a bloody thing for 3 consecutive days. As if declaring my busyness proves, cancer be damned, I am STILL a contributing member of society.


After my daily morning treatment, one of my radiation techs will often ask about my plans for the rest of the day. I�m weirdly relieved when I have a number of errands I can rattle off. Or a family outing we have planned for the weekend.


Today I had nothing. Literally, nothing. And I was bizarrely embarrassed to admit that.


�So, Liz -- any plans for today?�

�Nope. Um. Nope. Nothing. Just going home. To. Rest?�


Inside, of course, I was thrilled to finally have a day with nothing I HAD to do. Thrilled and ashamed.


This time of year, especially, we run around like chickens with our heads cut off, and we�re happy to do it because it makes us feel important and needed and valuable. We wear our busyness like a badge of honor: I am so crazy busy, man! My presence is in high demand! I am carpe-dieming the sh*t out of life!


But --

how exactly does running ourselves ragged contribute to our well-being?

It doesn�t. It makes us stressed and miserable. I don�t want to be stressed and miserable.


And I�m not talking about our jobs or taking care of our kids or any of the things we HAVE to do. You should really keep doing those things. But we can probably free up a few spaces in our calendars to just do precisely nothing.

Good Things Happen When We Stop Trying To Do It All


Photo by Nine K�pfer on Unsplash

When we�re not distracted by a relentless flurry of activity, something really cool happens: we connect, we reflect, and we grow. Three things I'd wager that are more important (and fun and pleasurable) than an overbooked planner.


When we slow down and stop pretending like being busy is the only measure of success - that�s when most of our �a-ha� moments occur. Stepping off the hamster wheel for a minute gives us clarity. Eliminating some of our self-imposed busyness opens us up to truly appreciate the things we insist are important to us - like quiet, leisurely moments spent with the people we love, watching our children delight in nature, and a rich inner life.


I don�t like to credit cancer with enriching my life (cancer didn�t make me grow - I did), but treatments did force me to reevaluate how I spend my time and energy. There were moments during the last year when I felt like I was juggling a dozen swords and flaming torches while balancing on a unicycle. I was exhausted and frazzled. But when I stopped long enough to see what was going on, I realized that much of my exhaustion and general frazzled-ness were the result of activities I didn�t NEED to do. (that and chemo running through my veins. But mindless busyness, mostly.)


There is value and opportunity for growth in the calm moments when our busyness comes to a screeching halt. I know that sounds like the advice you�d get from a bearded, blissed-out mountain guru, but I stand by it.


A few years ago, Tim Kreider wrote a hugely popular and insightful article called �The �Busy� Trap� for the New York Times. In it he says:


�Idleness is not just a vacation, an indulgence or a vice; it is as indispensable to the brain as vitamin D is to the body, and deprived of it we suffer a mental affliction as disfiguring as rickets. The space and quiet that idleness provides is a necessary condition for standing back from life and seeing it whole, for making unexpected connections and waiting for the wild summer lightning strikes of inspiration -- it is, paradoxically, necessary to getting any work done.�


You are not a loser for taking it easy today. Relaxing doesn't make you a failure. You�re not less ambitious or boring or pathetic if you want to check out from the busy scene for an afternoon. And. Just. Do. Nothing.


You�re doing yourself (and the world) a much deserved favor.



Do you ever  feel pressure to fill your days with busyness?

Do you feel guilty or lazy when you aren�t busy? Like you should be finding something productive to do with your time?

Or do you consciously try to set aside time for just �being� instead of �doing?�


The Peaks and Valleys of a Life with Cancer


This space could use a little jolt of happy, wouldn�t you agree?

I had my first post-op appointment with my surgical oncologist yesterday. Remind me to stop scheduling things in the afternoon. Waiting around all day turns me into a strung out lunatic. By the time we were ready to leave, my stress level had surpassed its breaking point. Paul drove. I cried.

Perched on the examining room chair, I fidget with the ties of my pink cover-up. My doctor pokes his head in the door, smiling. Smiling is a good sign. I like smiling.

We talk about how I�m feeling. He takes a look at my incision. He decides it�s time to remove the sutures.

�I�ll be right back. I�m just going to run and grab a suture removal kit, ok?�

Ok. But um, like -- do I still have cancer?


I love my doctor. He�s the best. He�s brilliant. And sometimes brilliant people are�slightly scatterbrained? Or eccentric. So I forgive him for not launching into my pathology results the moment he walked in the door. 

As he�s pulling out my stitches: �So the pathology, it all came back negative. The margins are clear.�

!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

And you didn't open with that because...?!


But who cares! I am blissed out of my damn mind.



To clarify: when you have a mastectomy, a rim of normal tissue surrounding the tumor is also removed, which is called a "margin." My first mastectomy in July resulted in "dirty" or "positive" margins, which is why I required a second operation.

It turns out there is still one area where the margin is "close," meaning cancer cells were not far from the edge of the removed tissue. This isn't ideal, but my medical team is confident that adjuvant radiation therapy and 10 years of Tamoxifen will be more than enough to make sure this cancer knows it's not welcome and it needs to find another couch to crash on.

I practically skipped down the steps to the parking lot. I was giddy. Like a 50 pound weight had been lifted from my shoulders.

And then we got into the car and headed to our second appointment of the day: Roswell Park's Assessment and Treatment Center.

These are our days: ping-ponging from moments of dizzying rapture back to the unhappy reality of Paul�s worsening symptoms: feverish temps, stomach pain, vomiting.

Right before we had left for my appointment, Paul called his oncologist's office to fill them in on his condition. "Come in," they said. They needed to check him over. To rule out an infection or something worse.

It was the usual succession of tests -- bloodwork, urine sample, x-ray. Most of our time is spent waiting.

I crawled into the small space Paul had made for me in his hospital bed, avoiding the tubing that was pumping sodium chloride into his depleted body. We watched Chopped on the Food Network, and I pressed my face against his bony shoulder. Everything: the flit of nurses in-and-out, the boring cable TV, the rough hospital linens --it�s all so familiar. How many days have we spent in this exact position?

Nothing particularly stood out with any of Paul's test results, so they sent us home with a short-term antibiotic (just in case) and instructions to call in the morning to schedule another blood transfusion.


Which is how we will be spending our day tomorrow.

Highs and lows, man. Highs and lows.

We Need To Be OK with Not Being OK

fake smile

In case you were wondering, here are ten ordinary tasks that are impossibly hard to do after a mastectomy:
  1. getting out of bed 
  2. getting into bed
  3. getting comfortable enough to sleep in said bed 
  4. opening the refrigerator 
  5. opening pill bottles 
  6. opening anything 
  7. staying awake for more than a few hours at a time 
  8. putting on t-shirts 
  9. sitting on the same couch as a squirmy 3-year-old 
  10. updating your blog, apparently
Things went fine on Monday. As fine as these things can go. No complications, unless you count a bout of nausea so severe it made me reach for the call light. I LOATHE using the call light, so yes, it was that bad. 

No skin grafts were necessary for the wound closure. Thrilling news! We are so, so pleased about that.

By Tuesday afternoon, I was home. I�ve been sleeping ever since. I wouldn�t be surprised if Ingrid equates adulthood with perpetual naps and constant doctors' appointments. Because that is what the adults in her life do: sleep and go to the doctor. She may never want to grow up.

How does this surgery compare to the one I had in July?

Pain level is about the same. Very controllable with meds. This time around, though, it�s like my body is confused about where exactly surgery took place. I have zero pain at my incision site. For the most part, the right half of my torso is entirely numb. Scar tissue and all that.

You know where I hurt? My bum. Swear to God. The pain starts at my lower back and radiates down to my derrire and upper thighs. My surgeon anticipated lower back pain because of all the skin-stretching going on, so I�m not concerned. Just sore.

�I�m fine, I�m fine, I�m fine, I�m fine, I'm...What Were We Talking About?�

How am I doing emotionally? Eh. The first few days after surgery, your brain can only process things on the most basic survivalist level. You just want to rest, to stop hurting, to be able to stomach a bowl of oatmeal, to heal.

Days pass, and you start to feel better physically. Your brain has enough fuel to move beyond �let�s just stay alive today.� This is where the emotional distress creeps in, ever so stealthily. Or maybe it kicks in the door full-force, robbing you blind and leaving you for dead.

I�d say, on an emotional level, I am coping less than perfectly. I�m not locking myself in the bathroom to cry all day or anything. Most of the time, I�m somewhat getting through my day. When I wake up, I brush my teeth and give my kid cereal. But there�s a new heaviness with this second surgery. Partly because I�m anxious about the pathology results. Partly because I�m unhappy with the way I look. Partly because I feel guilty about being unhappy with the way I look. (Emotions are ALL over the map. Tamoxifen isn�t doing me any favors, either.)

In our house, there�s this chorus that echos repeatedly: �I�m fine, I�m fine, I�m fine, I�m fine.

�I�m tired, but I�m fine.�
�It�s painful, but I�ll live.�
�I�m repulsed by my own skin, but haha, can�t complain!�

I will live. And there�s plenty more reason for me to be happy with my life than to complain. BUT...am I really fine? Is that seriously the best adjective I can come up with to describe my current emotional state? Am I really 100% OK with having my chest butchered like a slab of meat? No. I would say, um, not.

Yesterday was the first time I really looked at my body without clothing. Like really looked at it.

I grossed me out.

I have an 8-inch incision that runs diagonally from my right armpit to just past the middle of my chest. It meets with a curvy 5-inch vertical cut running down the right side of my torso.

The scars are unpretty, but I can live with them. What bothers me is my lopsidedness - there�s still an implant where my left breast used to be. I�m all for nixing both implants to achieve some balance. At this juncture, however, my doctor didn�t want to add more surgery to what was already a major operation. He preferred to minimize even the smallest risk of complication or infection, and rightly so.

I will be okay. When I am. Until that time, I�m going to be a little bit sad about my less-than-terrific uni-boob. I�m going to be mildly (and temporarily) unhinged while I�m waiting for test results.

You Don�t Need to Bury Your Ugly Feelings Beneath a Layer of Rainbow Sprinkles and Unicorns

Besides, I�m more than tired of these sparkly images of women jumping right back in the saddle after breast surgery. I�m tired of the trite Pinterest memes about �cancer-thriving� (yes, that is a commonly used term) and �feeling strong and beautiful in your skin� right after a mastectomy. It�s total hogwash. I feel the opposite of �strong and beautiful in my skin.� I�m self-conscious and uncomfortable with my asymmetry. 

It takes time (and counseling and drugs and prayer) to achieve that kind of peace. Let�s not kid ourselves.

Let�s also let ourselves be sad. And angry. And human. Why are we so quick to deny our suffering in front of people? In front of ourselves, even? Why are we obsessed with being okay with NOT okay things? Why do we strive to put a positive spin on every last thing that happens to us?

Because we want our sad stories to come with happy endings. We like our challenges in life to come paired with a cute corresponding morality nugget. Pain is more digestible when it's tastefully wrapped in hip kraft paper and sealed with a bow. We like it to be tidy and meaningful. 

Plain old suffering is not the stuff of inspirational Instagram posts. It�s icky, and it makes us uncomfortable, and we don�t like it!

Poking around an Internet cancer support forum, I found a thread where a woman was struggling with her husband�s recent setback in treatment. She was seeking advice on how to remain optimistic in the face of less than hopeful circumstances.

One response barbed me. It read something like, �you just push through it - that�s all there is to it. Never let your husband see your doubt. You must stay optimistic at all times in front of him.�

Nope. No and no! We all work through things differently, but this is just bad advice.

I�m not advocating indulgent sniveling marathons. I�m not suggesting this woman throw in the towel or that she view life through the murky lens of bitterness.

What I�m suggesting is that she ought to be HUMAN. She�s entitled to feel feelings. Even the ugly ones. Especially the ugly ones. It would likely do her husband good to witness the occasional cry, too. You can still be someone�s rock even if you�re sometimes sad about the hard things in your life.

It�s Okay to Not Be Okay

I�ve been both a caregiver to my husband and a cancer patient myself, so I feel like I have the authority to say: It was OKAY to see my husband struggle with my diagnosis. It was OKAY to see him cry on my behalf. It was OKAY for him to lose it for 10 seconds when I took my bandages off this week.

I mean, it sucked big time to see him so distraught. It wasn�t pleasant (remind me - what part of cancer is?) But it made me feel loved in a very raw and personal and honest way.

Truthfully, it would have irked the shit out of me if his only response to my distress during chemo was a plucky, �You�ll get through it, honey. I believe in you!� It would have been kind of uncool if he was smiling in fake optimism while my breast surgeon explained that my mastectomy had resulted in �dirty margins� and I would be needing another surgery.

It is perfectly reasonable and healthy to run the gamut of emotions here. Cancer will do that to you. Life will do that to you.

As the lovely writer Nora McInerny puts it:
�The cure for grief is not �be not sad� and the cure for anger isn�t �be unangry!� It�s feeling all of these things, even the uncomfortable ones, without judging yourself for them.�
Right on!

So feel your feelings. The gross, painful ones too. Stop apologizing for them. Work with them and through them.

That�s how we�ll arrive at being okay. Not by pretending things are brilliant when they aren't. That only leaves others confused and worse - ashamed about their own ugly feelings. 

Instead, let's be helpful by being honest. Let's give ourselves permission to be something other than "fine." Let's be okay when we're ready to be okay. 

Photo courtesy of  Amen Clinics"Paper Smile" (CC BY-SA 2.0) 

Not to Bum You Out on a Friday, But...


It's been a not good week.

I've stalled on this post for a couple of days now. I didn't want to write it. I had to let the thoughts swirl around my head for a bit like glitter suspended in a snow globe before they settled into a more decipherable pattern. Also, I needed to be able to type without tears blurring my vision (oy vey). I can do that now, so no more dodging the subject.

I got some bad news from my surgical oncologist on Tuesday.

After quickly checking on my incision sites he sat with his head down and said, "We need to talk." (up there with "I want a divorce" and "we're out of cheese" as one of the most stressful 4-word sentences in the English language.)

WHAT DO YOU MEAN WE NEED TO TALK?! What is there to talk about aside from how I'm winning at this whole mastectomy business and look I can almost raise my arms above my head and could you excuse me for a minute because I'm going to go throw up now, thanks.

"I've been dreading this conversation. It's not something I could tell you on the phone."

"OK."

"We got the pathology back and I'm afraid the edges tested positive for cancer."

"OK."

"I'm going to have to reoperate."

"Oh Kaaaaaay.... Oh. What?"

To put things plainly: the pathology indicates there is STILL cancer in my body. It's microscopic, lurking in my chest muscle, beyond the mastectomy lines. My surgeon needs to perform another  full mastectomy on my right side, removing even more tissue this time around. Reconstruction, at this point, will most likely not be an option.

At some point in the discussion (the bulk of which I spent stupefied, stuttering "ok, ok, ok...") I chanced a tearful look at Paul. Can we all just agree that seeing your husband with his head in his hands, racked with sobs, is just the worst? Yes Liz, they all said in unison. It's the absolute worst.

It's a wonder I retained as much of that conversation as I did.

And I was doing so well! I was healing beautifully. I was pleased with my reconstruction, and I was finally feeling like a whole person again. I was arriving at confidence and comfort in my new skin.

Now I feel rather like I've been handed the lottery only to have it retracted a few weeks later.

Or I'm the mistakenly crowned Miss Universe in that whole mixed up debacle. So sorry, but we'll be taking that tiara back, sweetheart. Psych! 

On top of the world one minute. Fist to the gut the next.

Before this bloody appointment, I was beginning to feel well enough to resume my primary role as caregiver. An important goal because my family needs me to not be sick. My family needs me to get a job and potty-train Ingrid. I have no room in my life for cancer anymore. It needs to go away.

I won't lie. I sulked for a full 48 hours about things. Still a bit sulky, really. It's just the working stuff out in my brain that takes time. It's no easy task, assigning meaning and clarity to all of these ugly feelings. My brain will get there, eventually, churning them out piece by piece.

Just not today.

That appointment was only one of four this week (not to mention an hour-long visiting nurse session yesterday). I am spent.

For the record, I did have an entirely different post lined up for today. One that didn't revolve around me, me, me. I'm not the only one with cancer in this family, after all. An update on Paul should be forthcoming, I promise.

It's Surgery Week. Let's Talk About Nerves.

4 days until surgery. The madness Richter scale is rising. I'd say we're at a 5. No, 6. 
6 and mounting steadily.


I recall informing people during the early stages of my treatment that I was "quite zen" about things. I wasn't being flip here. Or arrogant. I wasn't trying to downplay the gravity of our family being handed a second cancer diagnosis. I was just telling the truth. I felt peaceful. I don't know why. I'm a freak. I'm a weirdo. I don't belong here.

If you approached me anytime from late February until maybe a few weeks ago and asked me how I was doing that's probably the answer you got: I feel fine. I'm at peace. Life, I love you; all is groovy.

Of course, timing is everything.

My sometimes fragile mental state has been subject to a rather extreme yo-yo effect since diagnosis. The first two weeks? Zen is not the word I'd use to describe...anything. Things were more like... a rabid runaway train heading full-speed towards a collapsed bridge. With the exciting movie score replaced by panicked primal screams.

Those first two weeks I was light years away from anything remotely resembling "zen." I was scared. Angry. Anxious, mostly. I didn't know how in the heck we were going to get through the next year.

Some of my fears were sensible. How were we going to take care of Ingrid when we were both too tired to move from the couch? How were we going to make mortgage payments? How would we keep our refrigerator stocked? How were we going to coordinate puking time slots with ONE bathroom???

For two weeks, I was in full-on freak-out mode. Probably only Paul noticed. Because I am an expert at hiding my crazy.

Then during Sunday mass we heard this fortuitous Gospel: Matthew 6:25-34. It's an exceptionally beautiful passage about NOT WORRYING. It's the one with the "birds of the air" and the "lilies of the field." Here:
"So do not worry and say, 'What are we to eat?' or 'What are we to drink?' or 'What are we to wear?' Your Heavenly Father knows that you need them all. But seek first the Kingdom and his righteousness, and all these things will be given you besides. Do not worry about tomorrow; tomorrow will take care of itself."
Those words were the balm that my jittery mind needed. I went home and printed them out and stuck them on my fridge. And then scribbled them in my journal. Because I'm slow at these things, and I need constant visual reminders.

"DO NOT BE ANXIOUS." Easier said than done, yes. But absolutely necessary if I ever planned to make it through the next several months.

I did make it through. Hi. I'm Liz. Still here, still (almost) sane, still making mortgage payments and feeding my family.

I'm slated for surgery in 4 days. My surgeon will remove both of my breasts (one for prophylactic measures) and all of the lymph nodes in my right underarm. He'll also remove my mediport (sayonara sucker). My plastic surgeon will insert expanders, which will slowly stretch the skin. (I know. It freaks me out, too.) It will be several months before they can put in implants because I need to get blasted with radiation first.

sidenote: Please, don't hassle me about my decision to go down this surgical route (reconstruction, removing a healthy breast, etc). People have opinions on everything under the sun, and for whatever reason, breast reconstruction strikes a nerve with certain pontifical persons. I've put a lot of thought into my choices, and I am not making these decisions lightly. Keep in mind, reconstruction after breast cancer is NOTHING like getting implants. OK?? Different procedure, different outcomes, different emotional things going on. I am not getting a "boob job." I am getting CANCER out of my body. 
Anyway --

My anxiety through all of this has been like bookends, sandwiching a few months of calm. I've come full circle now, back to the nail-biting stomachaches of my initial diagnosis. Three cheers for Lorazepam! 

And, truth be told, even my transitional period of "zen vibes" was peppered with worry. Perusing my journals, I found an entry in May where I confessed to crying for a full week. Basically over nothing. But then my smart husband reminded me:
"Uh, Liz. This isn't 'nothing.' It's not just some minor bump in the road that every couple encounters. This is big. And it's hard. And you just got your body pumped with drugs. So go REST because this is big, hard, shitty stuff, and your brain can only take so much before it cracks."
It was such a gift, then, when my Godparents offered their beautiful home on Lake Canadaigua for a brief respite before surgery. They are the loveliest people, and being on the water with my favorites was exactly what I (we) needed.

Our fearless passenger: Ingrid was born to be on the water.


 

I believe those 3 days made up the longest stretch of time I've gone without dwelling on my upcoming procedure or  Paul's cancer. That's something. We drank beers on the pontoon boat, we laughed hysterically on the jetskis, and we reminisced about Breaking Bad  in the hot tub under the stars. We collected seashells and memories. It was marvelous. It gave us the distance we needed from our worries to just be with each other and enjoy life. 

I lied, though. I did think about my surgery. But only once or twice, when it was brought up in conversation. At one point, my sister's boyfriend asked a rather oddly phrased question: "Liz, are you excited about your surgery?"

I laughed and replied with a quick sarcastic response. Um, yes, I am sooo excited to have my body disfigured and go through several weeks of feeling like I have cannonballs strapped to my chest. I am the luckiest!

But he was serious. (?!) Once I worked through his question, which was probably garbled by a couple of IPA's, I understood what he meant. He was asking me (rather astutely, actually) if I was excited to GET THIS CANCER OUT OF MY BODY ONCE AND FOR ALL. Was I excited to be CANCER-FREE? 

I can get so caught up in the awful things that surgery means to me. (disfigurement, pain, helplessness during recovery, lack of control, etc.) But, really, I should be looking at surgery differently: it's going to fix me. It's going to take my breasts, yeah, and I'm angry about that. But it's also going to give my cancer the boot.

So ok: I guess I am excited about surgery. Or I should be. If I think hard enough about what it really means, I can be happy about it. If it can save my life and keep me around for my gorgeous daughter, then I say: take whatever body part you must.

So. Precisely three years after I was admitted to Millard Fillmore Suburban Hospital as a rotund and blissful mom-to-be, I will be admitted there once more. Less rotund, less blissful. But still hopeful. And, dare we say, excited??

For Life's Not A Paragraph, And Death I Think Is No Parenthesis

You know when you've put something off because it's unpleasant, and then it becomes harder and harder to bring yourself to do it, an...